Happy Reunion Deets

After picking up Tena and Bease, we had to make a drive thru stop at Chic-fila, their fave!!!! Then we made our way to the apartment to begin our fun. Wright had little gifts for Tena and Bease that he had wrapped himself.  I believe they played for hours.....dress up, wrestle men, school, coloring, Smurf Dance Off, watching TV, doctoring on poor Max, puzzles, etc. Wright played with toys he had not played with EVER. We accommodated every one's cravings by ordering Domino's and PF Changs. Wright taught Bease how to eat with chopsticks.

This picture made me holler!!!

Drinking that Chic-fila SWEET TEA!!!!

Playing, playing, playing!!!

Lord, they finally went to bed and thank goodness everyone slept late. While Princess Beasley was sleeping Saturday morning,  Wright scurried around and helped cook breakfast. He actually told me what he wanted to cook and was a big help. We had bacon, scrambled eggs, grits, toast and pancakes that he cut into butterflies and flowers. He was so proud and it was delicious!!!

We played some more and then we ordered take out from a place Wright saw on the Food Network. It is called Terry's Turf Club. Boy was it good!!! The place was packed and Tena had to drop me off so I could run in and get the food. A little pricey for burgers, but none the less worth it!!!

This was a really neat place and looked just like it did on TV. Wright was so proud!!

That night when we went to bed, Wright asked as he always does, "Mama, what is tomorrow's day"? I told him Sunday and he began to cry because he knew Miss Tena and Beasley would be going home. I am not going to talk much about the departure because I will cry again, but as soon as Tena sends me her pictures I will post them.

Happy Reunion

This weekend was very special to say the least! Wright was reunited with his best buddy, Beasley, that he did confirm they will marry when they are 21 years old. They were beyond excited to see one another. I am so glad Tena was well enough to make the trip. We were blessed that Wright received the okay from his doc about the visit. I think it meant the world to these two children and it tickled my soul to see Wright play with someone his age and act normal. He did an excellent job keeping up with Bease and for just a moment, it was like none of the past year's events had ever even transpired. It was AWESOME!!! I felt like a normal Mom with a normal kid having a normal play date. Bease never for a minute looked or acted as if Wright was any different than he was before. She warmed my heart the way she sincerely loves him... simply because he is Wright.

 Now, before going into any weekend details, you must first understand the origin of Wright and Bease's friendship. My sister, Gina, and Tena are the same age.  For as long as I can remember, she and Tena were best  friends. We all grew up together, went to school with one another, came back from college and all settled back in our hometown of Wallace. We helped one another get married to some local boys and we were right there to help as we birthed our babies.  Gina and Tena were pregnant with their first baby together.  Tena and I were pregnant with our second babies together (Wright and Bease). Our due date was actually a month apart, but we would joke and say "wouldn't it be cool if they were born on the same day?". Now, honestly I was not all about waiting until Tena's due date to have Wright. For goodness sake, a month late??? Well, I did go two weeks late and Tena went two weeks early. No, hate to disappoint anyone...they were not born on the same day..... Wright was born on May 16, 2005 and Beasley on May 17, 2005. Boy was it a time in the hospital with Ken Roberts. We had a special time. We all had lots of visitors. All Tena's visitors stopped by to see us and all our visitors went to see Tena. I have a picture at my house that I will certainly post later of the two babies  side by side in the hospital bassinets. They were adorable. Wright weighed 9 lbs 11 oz and was 23 1/2 inches long.....a whopper!!!! Sweet Bease and her petite self weighed only 7 lbs 3 oz and 19 1/2 inches long. They have celebrated every birthday together  ever since except this past year. Their little friendship goes even beyond their entrance into the world.  Miss Tena keeps children in her home. And as fate would have it, when our precious baby sitter Grandma Mary became very sick, Tena had openings for two children and began keeping both of my boys while I was at work. So basically, Wright and Beasley have grown up together. This is really the first time ever they have been separated....EVER!

 Celebrating their 5th Birthday together at Cinderella

 Lazarex trike a thon while attending preschool together

 Christmas at Twilight

 Bease in Cincy

 Happy Wright

 In the car after we picked Bease up from airport! They were so tickled!

 Playing Smurf Dance Off

Watching movies

Their friendship is so special and TICKLES MY SOUL. Wright truly loves Beasley with all of his heart and misses her so much. This visit was better than any medicine any doctor could of given him. It was good for me to get a "dose" of normal too!!

I love children! I always have. I love the way they accept changes, differences, and challenges. They are so resilient! I love the way children love Jesus. I love the way they pray. I love that when Wright prays and asks Jesus for his help, that Wright is confident that his prayer will be answered.

"Let the children come to me. Don't stop them! For the Kingdom of God belongs to such as these. I assure you, anyone who doesn't have their kind of faith will never get into the Kingdom of God." Mark 10:14-15

Thanks for all the blog support!

Thanks for all the encouragement and sweet comments on my new blog and my sweet followers!!!! I have made quite a few non-facebookers pretty happy.  I got a text from my precious Daddy this morning that he liked it...it just tickled my soul!! Gosh I miss him and my Mama so much. After having Hill and Wright, I understand and appreciate so much more all the sacrifices they made and sleepless nights that had because of Gina and me.

So Wright has had a pretty good day. Those four days at home have really motivated him. I love it! He wakes up now each morning ready to take his medicine and get dressed. He picks out his own outfit and actually dresses himself and bless his heart sprays on axe deodorant. He smelled so high today I got a severe headache. we are in a very different place than where we were just a few weeks ago. \0/Praise the Lord \0/  I put him in his "bubble stroller" wearing his "green mask" and let him pick out school supplies today. He was so excited and it was bittersweet for me. I so much wish he was attending first grade in a real school with the rest of his buddies. I know that time will come soon enough but I can help but feel like he is missing out. I do cherish our time so much and feel like we are making so many memories of our own. Anyway, he picked out some supplies and we are fixing up a room in our apartment like a classroom so we will have our own space for school. So glad to see him excited. I let him get a lunchbox and bookbag because he has wanted one so bad. He asked if we were going to have nap time at school and I think I yelled "yes" so fast I scared him!!! Remember, its the little things!!! Okay, so I like to ramble....enough for now. I'll explain our title later as well as try to get all my 'notes' during Wright's journey on the blog.

First Blog Ever...

Okay, I finally did it!!! Thanks to Heather Owens and Georgia Farrior as my teachers and encouragers, I have attempted to create a blog. Lately, I have been following several blogs and think it will be a very neat way to document our crazy life. I have to admit, it was a little intimidating trying something new. I really like the ease and "mindlessness" at which I post on facebook. However, I know numerous people not on facebook that would like to get  Wright's updates, so I am trying to accommodate all levels of internet access. Anyway, today in day hospital has proved to be a pretty good day if I do say so myself. Wright's labs on Monday were awesome!! Praise God!!!! And for the most part, were relatively unchanged today. A few things went up and a few went down, but no real big change. Adenovirus was <625 on Monday, so minus all the diarrhea CMX is proving to be successful. We are contending with a cough/runny nose issue that got better the 4 days we were home, only to flare again when we returned. I told the doctor we were allergic to Cincinnati and needed to get home quickly to get this dreadful allergy fixed. She partially agreed and gave us a script for allergy meds. Oh well, it was worth a try. Then the bloody noses that are self inflicted with Wright's pointer fingers, but none the less cause us a great deal of stress. Even though platelets were stable, we got some today just to be safe.Today as we were leaving the hospital he somehow got choked on a huge blood clot from his nose in the lobby. I thought for sure someone would see us and admit the poor guy. I got out fast. But not before he opened his mouth with blood all in it freaking out the other people on the elevator. He looked like something off a horror movie screaming with blood all in his teeth . I had to chuckle to keep from crying. We did meet Wright's new teacher today. He will see her once a week and the rest is up to me. Oh NO!!! All I can say is we may have alot drive by field trips. Teacher friends....HELP ME!!!We got other great news! We do not go back to day hospital or clinic again until next Wednesday. Yep, you read that right! God is soooo good, isnt't He? As long as he continues on this great path, we will only go to the hospital once a week. The other awesome part is we may get to go home again for an extended vacay once a month pending travel. Our doc will not let Wright travel in a car for 10 hours just yet, nor can he fly commercially.  I tried as best I could to pin down our doc on a "possibly home for good date". No one here likes to ever go there because its just not "good luck". Well, we know how our "luck" seems to be, so I did not press too hard. Basically, we need to wean Wright's steroids down to half per kilo, which is roughly 10 mg daily with no rebound GVH or other problems. We have to wean Wright VERY slowly because of his severe GVH history but also his history with fevers and body aches with steroid wean. I ask each of you to pray, pray, pray that he stays well and is successful with the steroid wean. That his liver and kidneys continue to function well. That his platelets continue to increase on their own as well as his ANC. This has been an extremely long and emotional ride and we are ready to be in Wallace for good with Daddy and Hill. Well, I think I have written enough for my first blog entry. I promise they will not always be so long!!! Maybe next blog I can explain to you where the title of our blog came from. Those who know me really well should know......that tickles my soul!