Sunday, November 17, 2013

Twenty Three Months later...... Wright's light still SHINES!!!

I have woken up every single morning for twenty three months praying it's all been a bad dream. I honestly still think of my boy every single second of everyday. And for those that wonder and those that ask .....NO, it has not gotten any better, easier, or less painful. I'm certain I drive some people crazy mentioning his name, recalling past memories or talking about our experiences in Cincinnati, but you see that is how I keep him with me, close to me...that is all I have of Wright now. All I have is sweet , sweet memories of his precious short life on this earth. I don't expect anyone to understand unless they have lost a child. I don't want you in this club. It's a club I stayed away from as long as I could and I hate being a part of more than anything. But let me say this, the people in this club are some of the sweetest, most sincere, caring, compassionate, understanding, strongest, trusting, non-judgemental, giving,  self less, most grateful and thankful people I have ever met.

Today is sort of a double anniversary day... Exactly two years ago today- November 17th our boy came home from Cincinnati after 15 long months. He was greeted by a fanfare of state troopers, fire trucks and police cars. Ironically like the Wallace Soccer Dogs had yesterday !! Go Dogs!! Tons of people in our wonderful community lined each side of the highway cheering my boy on as he led the parade waving in excitement that he was 
finally home!! To say he was excited was an understatement. He told Denny and 
me that he was scared everyone in Wallace had forgotten about him. That night in bed he grinned and said , "Mama they remembered me, they do love me!" He also thought all the Christmas lights on Main Street were just for him too!! He 

also went on to tell us that even though he was home it did not make him better. He said with the sweetest trembling voice that he would only get better when he went home to Jesus. We both cried and hugged for the longest time. Being at home those 6 days before going back to the hospital was different. It was like we were living on borrowed time. Thinking back it's hard to remember what we did those 6 days. I do remember planning our feast for Thanksgiving. Wright was such a planner and he loved to cook! He loved holidays. He had our Thanksgiving feast all planned out down to the white booties we were to put on our turkey's legs, Gigi's sweet potato pie, and the special pans and recipe for our cornbread. Not sure Denny, Hill or me will ever want to have a Thanksgiving 
feast again. I pray we will want to one day.


Just three days before Thanksgiving Wright was put in the hospital because 
gram negative rods were growing in his blood. By the time we got to Chapel Hill from NHRMC he went into septic shock and we were put into PICU. This event led to the horrible downward spiral of balancing antibiotics for bacteria and immune suppression for graft vs host disease. Is truly was a no win situation and Wright's body was already so tired and weak. Wright moved in with his number one hero - Jesus - twenty three months ago today.  Our lives changed that day forever ....but his light still shines everyday!! I see glimpses of him and feel him close so much. In the early morning on my rides home from work...just as the sun is peaking through.  From texts, posts, cards, emails or calls from  
nurses, doctors, preschool parents and teachers that loved my boy!! I get the best hugs from his preschool buddies when they see me. I love the way they are not afraid to yell "there is Wright's mama!" It makes me feel so normal for just a moment. I see dragonflies everywhere!! Even in places they really should not be.   He truly is everywhere and always close to me , especially when I slow my busy life down and look for him. 

**for those that may not know, Wright was peculiar about his bedroom light. The minute we got home Nov 17, 2011 he turned his bedroom lamp on. The lamp light still burns. It has never been turned off, the bulb never gone out or replaced. It's not some sort of special bulb. It's the same as all the others that have been replaced numerous times over the past 2 years.. I love that this light still burns....it gives me a peace I can not describe!

His light still shines bright and for that I am so thankful!!!